Sunday, October 9, 2011
A new Dupuytren's research project has launched!
After much preparation, a collaborative effort is underway between Professor Paul Werker at Groningen University Medical Center in The Netherlands and Dr. Charles Eaton at The Hand Center in Jupiter, FL. This retrospective study will follow the long term outcomes of patients who have had Dupuytren's treated with Needle Aponeurotomy, and will take a fresh look at demographics, risk factors and patterns of involvement. Gronigen University medical student Alix Matton has traveled from the Netherlands to Jupiter to work on this project. After reviewing charts, she has begun the long process of contacting and interviewing patients for the study. This will take a while, but the plan is to reveal the results early next year. One more stepping stone in the path to find a cure.
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I am scheduled for Needle Aponeurotomy in 6 days by an Orthopedic Surgeon and after reading all of the information on the Dupuytren Foundation website, I am quite anxious. Because of my Kaiser Insurance, I must allow him to do the procedure but not knowing how many he has successfully done and the fact that he is not a Hand Surgeon sacres me to death. I am 62 years old and have had early signs of the disease for almost 10 years but it became much worse just in the last 12 months with my 5th finger on my left hand at a 90 degree angle and the 5th finger on my right hand at only 15% contracted. My fear is the potential nerve damage as I am a guitarist that would hate to lose my ability to play my music. Also, there was little discussion about the post procedural pain following Needle Aponeurotomy. What can I expect? Thanks to all who view this site for your feed back...
ReplyDeleteDR EATON I'M A HAND SURGEON IN MEXICO AND HAVE A FEW PATIENT THAT WANT TO UNDERGO TREATMENT WITH XIAFLEX, WHAT'S YOUR EXPERIENCE AND IF YES HOW CAN I GET THE TREATMENT HERE OR IN JUPITER, THANK YOU
ReplyDeleteHi - I'd like to share an incident that has helped my Dupuytrens on my left ring finger. I probably had 20 degrees of bend on that finger, thickening of the tendon and quite severe attachment to the skin of the palm, with significant local pain (when stressed i.e. carrying, lifting etc).
ReplyDeleteI've practiced martial arts for 30+ yrs and last week I cleverly (not) stopped a kick with my left hand, bending the fingers back and causing great stress and some ‘tearing’ across the contracture.
Thinking the tendon had snapped, I took a closer look to realise some immediate bruising under the skin where the tendon has released itself from the skin. The tendon is now no thinner, but I have pretty much full flexibility back in that finger. What appears to have happened is the tendon has torn away from the inside of the skin. Visibly it is much better, as is the range of movement. Tendon is no less thicker, though much less visible. For your info I’m a white male, early 40s from European descent.
I am a patient of Dr. Eaton, and have had two procedures by him on my right hand. The first one lasted 4 years or so, and I am about two years since my last operation. Everything is going well so far, and I have acupuncture to help maintain my status.
ReplyDeleteI did go to a surgeon to see what they would say, and they seem pretty uninformed about Needle Aponevrotomy and seemed to believe that it would not work the last time. Is't our healthcare wonderful, always pulling down any alternative treatment.
Anyway, anybody that researches surgical treatment will discover that it does not have a good long-term outcome.
Dr Eaton, 63 yr old white female with RA, Ehlers Danlos , dupuytrens mainly left hand, starting. To be more advanced, left has had thumb authrodisis with spacer in base of thumb after the 5th surgery. I recently had 2nd surgery on right rotator cuff, first in May,2012 ,second Jan 30,2013 so still in immobilizer on right, 2 major tears,casule tightened,spurs on clavicle removed. Tendons reattached from shoulder and biscept. 1st surgery. No blood flow to repair so had to remove tissue to get good blood flow again. Dupuptrens showing only in left palm, pain in wrist had to inject yesterday to reduce inflammation to flexors. So brace on left hand, immbolizer on right arm. Any suggestions? My DR isDr Turnage for shoulder, Dr Nollert for Hand. Very unusual case thought you might be interested. Injection is down the road as my hand progresses. Right hand is noticeably larger than left palm side up. Email sunshinegrangran@aol.com. phone is 850-327-6166.
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